• Hope Loves Company

HLC Chats With Addie

This month, Hope Loves Company invited Addie, who joined us at Camp HLC in Indiana for the first time last week, to participate in our ALS Awareness campaign, HLC Chats With.


Addie with her Grandfather, Papa John.

My name is Addie Groshans. I am 12 years old and I will be going into 7th grade. I love school and learning. My grades are very important to me. I play basketball and volleyball. I love all things Marvel, but Captain America is my favorite hero, besides my Grandpa John. I admire Abraham Lincoln and the Titantic fascinates me. I collect snow globes and Lapel pens. My ALS journey only began on January 24, 2018 when my Grandpa John was diagnosed. My family is the most important thing in my life. My Grandma Cindy and Grandpa John have played a major role in my life and have helped me develop into the morally sound person that I am. They have ALWAYS been there to take care of me. There were so many terrible things that ALS brought into my life but one thing that ALS gave to me was a chance to be there for my Grandma and Grandpa like they have always been there for me. That love and support is all that matters. My Grandpa John passed away from ALS on September 6, 2018. Our family is working on adjusting to all of the changes. 

(HLC): Do you have a nick name? How did you get it?

(AG): My real name is Addison. My friends and family call me Addie or Ads. My Mom calls me Bubba. My favorite nick name is Oopie Pie , which was given to me by my Papa John. He would tell me there was nothing sweeter than his Oopie Pie.

(HLC:) What is your favorite childhood memory?

(AG): I have a huge family and we visit all of the time at my Grandma and Grandpa's house. My favorite childhood memories are from playing with my cousins at their house in the toy room.

(HLC): Camp HLC is one of our wonderful programs. Have you ever attended summer camp? If yes, what was your favorite memory about camp? (AG): I just attended my first HLC camp last week and let me tell you, it was a blast!!! I loved meeting new friends and trying new things. I was very comfortable around all of these "strangers". We had so many things in common.  I had the time of my life and I can't wait to go back.

(HLC): Who is your favorite musician? (AG): I enjoy many genres of music. I love the classics, like the Beatles and Queen.  I also love music from the 80's and some pop music from today as well. It all depends on what mood I am in. Music is one of the most important things in my life.

(HLC): Do you have a pet companion? If so, please share his/her name and what you love most about him/her. (AG): I have two dogs and they are actually named Lennon and Queen, after the musical influences in my life. My favorite thing about them is that whenever I am feeling sad or down, it is like they know it and there to make me feel better. (HLC): People would be surprised to know that...  (cool fact about you!)  (AG): My family is ginormous!!! I have 25 first cousins on my Mom's side and we are all very close in age and we all live really close. We still go to my Grandma and Grandpa's house every Sunday for lunch and to spend time together. (HLC): What is one thing you can share with others about resilience and adversity? (AG): Things may seem bad at times and it seems really cliche for people to say that it will get better. But the truth is that it does get better with time. When my Grandpa passed away from ALS, everyone would say that he was in a better place and that made me angry at first because I never wanted to see him in a bad place. But that bad place didn't last. The good memories are what I hold onto now.  (HLC): What's your go to person, book, or movie for inspiration? (AG): My Grandma Cindy is my inspiration. She raised all 8 of her kids to be kind and successful. She took care of my Grandpa John everyday even after a shoulder injury that happened when taking care of my Grandpa. No matter how hard it was and no matter how much pain she was in, she never stopped providing all of the hands on daily care that my Grandpa needed. She still takes care of all of her grandkids even after her shoulder surgery. My Grandma Cindy keeps pushing through no matter how hard it is (HLC): If you have a go to resource (website, blog, etc...) that you think would help others, please share it. (AG): This is my Grandpa John. Our family was interviewed for a telethon in St. Louis, MO. He passed away 2 weeks after this was recorded. 


(HLC): Share something that you want others to know about ALS...

(AG): Cherish the times that you have with the people you love. I was visiting my Grandpa the night before he passed away. There is no way I could have known that it was going to be the last time I would see him. But I know that he knows how much I love him because I showed him and told him. 


Thank you Addie for participating in HLC Chats With! We are so grateful to you and your family and so happy that we got to meet you at Camp HLC Indiana. On the last day of camp, Addie and her mother shared the beautiful poem that Addie wrote about ALS:


#ALS #ALSAwareness #HopeLovesCompany #HLCChatsWith #YoungCaregivers

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