Our flagship program provides essential in-person support, respite and community for young caregivers in camps across the nation.  These weekend-long retreats are family friendly, tailored to age groups and deliver coping techniques and trauma-based programs to youth between the ages of 7-18 years old.  

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In 2020 we added one virtual camp.

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Responding to the needs of our ever changing community, our virtual hangouts bring our youth together for monthly age-appropriate support, community and fun.  Led by qualified child life experts and therapists, the programs are rooted in self-care, coping, supporting mental health  and trauma-informed programming.

Young adults who were children caregivers have a unique journey as they navigate understanding their genetic risks, navigating relationships and transitioning into adulthood with a childhood that was in many ways, very different.   Our Young Adult Retreat gives space to our older caregivers and allows for deeper conversations and support as they navigate pivotal moments in their lives.

Supporting children whom are caregivers is a difficult journey for parents who are also caregiving.   Our parent groups meet virtually each month and are a place for parents to come together, learn about the programs for their children, discover other resources and find community with others who are in this journey as well.  

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Parents often meet at camp as well, with specific programs designed just for their unique needs and self care.

An ALS diagnosis is challenging and emotional for the entire family.  Often our families are overwhelmed and are seeking both immediate resources to talk to their kids about the diagnosis and ways to comfort them as well.  Our Hugs of Hope packages are packages of resources, care and hugs, delivered to the door of our youngest caregivers. 

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Hugs of Hope are always free.

Our commitment to supporting our children extends beyond the family to the professionals that they may encounter such as school social workers, therapists and more.  We strive bring education to professionals whom are in their lives and ensure they are well versed in ALS as well as the nuances of children whom are caregivers.   Our ever-evolving educational series starts at ALS 101, dives into how to talk to children about ALS, provides resources about the medical devices and more.  Many of our programs are eligible for continuing education credits.