Camp HLC is a free, three-day overnight retreat for children and teens who love someone with ALS or who have lost a loved one. Recently, NBCU Academy captured the heart of this experience in a powerful segment highlighting the strength, vulnerability, and resilience of the young people we serve. ( View on YouTube Here ) ALS (also known as Lou Gehrig’s disease) is a progressive illness that weakens muscles and impacts physical function. Most people live two to five years after

For many in the ALS community, Eric Dane was more than a familiar face. He was a father, a husband, a son, a friend, and a tireless advocate who chose to live his final chapter with courage, honesty, and deep love for his family. In sharing his journey publicly, Eric did something profoundly generous. He helped the world see that ALS is not only a medical diagnosis. ALS is a family diagnosis. It reshapes childhood. It changes relationships. It rewrites daily life. And it le

For more than a decade, Hope Loves Company (HLC) has walked alongside children and families who love someone with ALS or who have lost a loved one to the disease. Our work has always been rooted in one simple belief: no child should have to navigate ALS alone. As we look ahead to 2026, we are reflecting on where HLC began, how our programs have grown, and how we hope to expand our reach, deepen our impact, and serve even more families across the country. The Beginning: Why Ho

The holidays are often wrapped in sparkle. Twinkling lights. Familiar songs. Family traditions passed carefully from one generation to the next. But for many families navigating ALS or grieving a loved one lost to ALS, this season can feel very different. The world insists on joy, yet their reality holds something far heavier. Grief sits beside gratitude. Love sits beside longing. And the holidays become a time when both can feel impossibly big. At Hope Loves Company, we know

At Hope Loves Company, we believe in the incredible strength and creativity of children who love someone with ALS. Every child in our community carries a story that blends courage with compassion, and often, a spark of innovation. One of those bright sparks belongs to eight-year-old Bryce. When Bryce’s dad, Stephen, was diagnosed with ALS in 2022, her world changed. But instead of letting fear take over, Bryce turned her curiosity and love into action. Inspired by her father’

When a parent or other loved one is diagnosed with ALS, life for their children can change in an instant. These young caregivers are thrust into roles that carry heavy responsibilities. At Hope Loves Company, our mission has always been to remind these children that they are not alone... that love, compassion, and community surround them, even in the hardest times. One of the heartfelt ways we fulfill that mission is through our Hugs of Hope Packages.

Hope Loves Company (HLC) announces the launch of " Kids Are Curious " – an educational video series created to empower young caregivers...

At Hope Loves Company, we know firsthand that ALS can profoundly change the lives of families. The emotional, physical, and financial...

National nonprofit founder and leader is recognized for her impact on children of ALS families and trailblazing advocacy in honor of...

Hope Loves Company and Paint for a Cure partner to bring Camp HLC to Arizona. "Joy is the simplest form of gratitude."-Karl Barth — Jodi...