For Immediate Release
Contact:
Sarah Trott
Director of Marketing and Fundraising
sarah.trott@hopelovescompany.org
858-414-3406
Nonprofit Hope Loves Company Hosts Camp HLC California on November 17th-19th at Camp Campbell in Boulder Creek
Hope Loves Company, the only nonprofit in the United States dedicated to serving children and young adult caregivers impacted by ALS Lou Gehrig’s Disease, is preparing for Camp HLC California at Camp Campbell on November 17th-19th. HLC is celebrating its 10 year anniversary this year and its incredible footprint serving children and families in the northern California community and beyond.
Camp HLC is a three-day, overnight retreat for children and young adults, ages 6-21, who have or have had a loved one battling ALS. Through the generosity of our sponsors, the weekend retreat is free of charge to the ALS community in California and surrounding states.
ALS, or amyotrophic lateral sclerosis, colloquially known for the Ice Bucket Challenge, is an extremely rare and fatal progressive neurological disease that slowly limits one’s ability to walk, talk, eat, and breathe. Life expectancy is typically 2-5 years after diagnosis and there is no cure.
Camp HLC serves as a transformational opportunity for children and families to have fun, gain confidence through team building exercises, and meet peers experiencing the challenges of dealing with ALS at a young age. In addition to traditional camp activities, Camp HLC also uniquely provides young caregivers with coping mechanisms and grief support from certified specialists.
This timely event coincides with November National Caregiver Awareness Month, as HLC shines a spotlight on youth caregivers and their contribution specifically related to their parent or loved one battling ALS. In many cases, children of those living with ALS serve as family caregivers to their loved ones, assisting with daily activities such as bathing, meal preparation and range of motion exercises. According to a National Alliance for Caregiving and AARP survey, there are at least 3.4 million caregivers under the age of 18 nationwide.
Despite the devastating impacts of ALS, Hope Loves Company has been a steadfast source of emotional and educational support through a range of impactful initiatives, including six yearly Camp HLC retreats across the nation, college scholarships, and virtual support sessions.
Click here to see past coverage from “The Today Show” on Camp HLC!
To set up media interviews with and hear the stories of local Georgia families supported by HLC’s mission, contact sarah.trott@hopelovescompany.org or (858) 414-3406.
To learn more about Hope Loves Company’s free programs for families affected by ALS, visit our website, call 609-730-1144, or find us on social media: Facebook, Instagram, and Twitter.
I am a CALS. My husband is PALS. It was hard and I cry daily but not in front of him unless we cry together. He couldn’t find anything to give him happiness or hope. We have been focusing on our faith. He was only losing his voice before we made the decision to try different medications, which significantly enhanced his condition. He received treatment for ALS/MND at uinehealthcentre.com from Canada approximately four months ago; since then, he has stopped using a feeding tube, speech is getting better by the day, sleeps well, works out frequently, and has become very active.
Last year, my 68-year-old partner was diagnosed with Lou Gehrig's disease also known as ALS. Speaking and swallowing were two of his challenges. His collapse was swift and catastrophic, and neither the riluzole nor the medical staff did much to aid him. He would not have survived if our primary care physician hadn't given him attentive care and attention, as the hospital center didn't provide any psychological support. His fall was abrupt and catastrophic. His hands and legs gave way to weakness in his arms. This year our family physician suggested using vinehealthcentre. com ALS/MND treatment, which my husband has been receiving for a few months now. I'm delighted to say that the treatment greatly reduced and reversed his symptoms…
My first ALS symptom occurred in 2016, but was diagnosed in 2018. I had severe symptoms ranging from shortness of breath, balance problems, couldn't walk without a walker or a power chair, i had difficulty swallowing and fatigue. I was given medications which helped but only for a short burst of time, then I decided to try alternative measures and began on ALS Formula treatment from Aknni herbs centre, It has made a tremendous difference for me (Visit ww w. aknniherbscentre.c om). I had improved walking balance, increased appetite, muscle strength, improved eyesight and others.
ALS is a cruel disease. My mum is 83 and had great difficulty speaking and swallowing much of anything. Food was getting trapped in her throat and blocking her air way was happening more often. she battled for each breath. The riluzole did very little to help her. The medical team did even less. Her decline was rapid and devastating. The psychological support from the medical centre was non-existent and if it were not for the sensitive care and attention of our primary physician, there she would have died. There has been little if any progress in finding a cure or reliable treatment. Acupuncture eased her anxiety a bit. this year our primary physician started her on Natural Herbs Centre ALS/MND…