An ALS family is a unique family. Although roles may change, and challenges are many, love and support are the constant thread in holding an ALS family together. Never underestimate a child’s role in that unity. As a certified teacher, I have worked with children for most of my life. I have also raised three children who have lost a parent to ALS and understand how complicated life becomes for everyone in the family when a parent is ill. With that in mind, I have included a few suggestions below that were helpful to me as I learned to balance parenting with caregiving. Be patient with and aware of the organization and teamwork required for this juggling act.
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