Jodi O’Donnell-Ames lost her husband to a neurological disease in 2001. After seeing at first hand the impact his death had on their daughter, she has dedicated her life to supporting other families similarly affected.
Jodi’s husband Kevin first experienced symptoms of Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease, at the age of 29 and died aged 36 years, when their daughter Alina was eight years old.
After later remarrying Warren Benton Ames, whose wife Tina had also died from ALS in 2000 leaving two children aged 11 and eight years old, Jodi saw the need for supporting children and young people who had been affected by ALS.