Lou Gehrig’s disease, also known as ALS, is not just a fatal disease that affects an individual but an entire family.
ALS (Amyotrophic Lateral Sclerosis) causes the loss of muscle and body function as the disease progressively breaks down an individual’s nervous system.
People with the disease, which does not have a cure, lose their ability to walk and talk as time goes on.
Nonprofit Hope Loves Company (HLC), based in Pennington, has been bringing families affected by the disease together as they navigate the difficulties of ALS.
“Knowing HLC is present and a resource. The support it gives is not attainable any place else. Thank you from the bottom of our hearts,” two parents wrote in a letter to HLC.
...In 2022, HLC had 238 children and young adults participate in seven camps during the year with 81 volunteers.
“What is next for HLC is to improve our outreach and get in front of as many people as we can. My hope for the next phase is to really grow our young adult program,” Sullivan said.